Helping Other People

If a person has got something to offer no matter what the age of the person then they should do so. We can all learn new things from each other. I have been reading a 14 year old girls blog about her life with Neurofibromatosis.

Her blog is refreshing to have a younger persons view on the condition. I like to share information with as many people as possible. That's why I started this blog. If one persons views are changed by it then I'm happy. You can learn just as much from a young person than an adult.


I have been getting negative opinions about my disabilities. The people in question seem to make comments without doing any research of their own. If I make statements or say something I always research it first to make sure I have my facts right.

It is dangerous just to assume something is right in your eyes. If someone is going to comment on someones way of life, they should make sure they have the facts first. You can do more damage just speaking without thinking than just taking a moment to think before you speak.

Neurofibromatosis

Neurofibromatosis is the condition that caused my hemorrhage. I am putting information below to teach people about it.

The neurofibromatoses are genetic disorders of the nervous system that primarily affect the development and growth of neural (nerve) cell tissues. These disorders cause tumors to grow on nerves and produce other abnormalities such as skin changes and bone deformities. Although many affected persons inherit the disorder, between 30 and 50 percent of new cases arise spontaneously through mutation (change) in an individuals genes.

Once this change has taken place, the mutant gene can be passed on to succeeding generations. Scientists have classified the disorders as neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2). NF1 is the more common type of the neurofibromatoses. In diagnosing NF1, a physician looks for changes in skin appearance, tumors, or bone abnormalities, and/or a parent, sibling, or child with NF1. Symptoms of NF1, particularly those on the skin, are often evident at birth or during infancy and almost always by the time a child is about 10 years old.

NF2 is less common. NF2 is characterized by bilateral (occurring on both sides of the body) tumors on the eighth cranial nerve. The tumors cause pressure damage to neighboring nerves. To determine whether an individual has NF2, a physician looks for bilateral eighth nerve tumors and similar signs and symptoms in a parent, sibling, or child. Affected individuals may notice hearing loss as early as the teen years. Other early symptoms may include tinnitus (ringing noise in the ear) and poor balance. Headache, facial pain, or facial numbness, caused by pressure from the tumors, may also occur.

In most cases, symptoms of NF1 are mild, and patients live normal and productive lives. In some cases, however, NF1 can be severely debilitating. In some cases of NF2, the damage to nearby vital structures, such as other cranial nerves and the brainstem, can be life-threatening.

There is no treatment for NF at the moment. For some people it is more severe than it is others.