Loros

Loros is another fantastic Charity.

My step father Mick had been seriously ill since Christmas. At first we thought he just had a bug. The doctor gave him some antibiotics but they didn't help. He went to see the doctor again and he sent him for some tests they found out he had cancer.

He started his treatment. He then had further tests they told him he would only have about 4 months to live. They were going to keep giving him medication to help keep him comfortable. After a few weeks they did more tests and found he had even less time than expected.

He was moved from the hospital straight to Loros. Loros treated him with great dignity and respect. They made his last few days although he was in a lot of pain comfortable. Nothing was to much trouble for the staff there and they even made up a room for my mum to stay in. Loros (the Leicestershire and Rutland Organisation for the Relief of Suffering) is a hospices that relies solely on charity donations. They make no profit from anyone who stays their or their families. If you can afford to donate some money whatever you can spare then please do so to the following address.

The Leicestershire & Rutland Hospice Groby Road Leicester LE3 9QE

Miss me, but let me go

When I come to the end of the road And the sun has set for me I want no rites in a gloom filled room Why cry for a soul set free

Miss me a little - but not too long And not with your head bowed low Remember the love that we once shared

Miss me - but let me go For this is a journey that we must all take And each must go alone It's all a part of the Master's plan A step on the road to home

When you are lonely, and sick of heart Go to the friends we know And bury your sorrows in doing good deeds Miss me - but let me go

Mick will be missed by all that knew him. It was a 5 days before his 65th birthday so he never got to retire. I know he will be watching over all of us and protecting us like he did when he was alive.

Helping Other People

If a person has got something to offer no matter what the age of the person then they should do so. We can all learn new things from each other. I have been reading a 14 year old girls blog about her life with Neurofibromatosis.

Her blog is refreshing to have a younger persons view on the condition. I like to share information with as many people as possible. That's why I started this blog. If one persons views are changed by it then I'm happy. You can learn just as much from a young person than an adult.


I have been getting negative opinions about my disabilities. The people in question seem to make comments without doing any research of their own. If I make statements or say something I always research it first to make sure I have my facts right.

It is dangerous just to assume something is right in your eyes. If someone is going to comment on someones way of life, they should make sure they have the facts first. You can do more damage just speaking without thinking than just taking a moment to think before you speak.

Headway

Headway is a fantastic organization.  When I first had my brain haemorrhage they came to see me in hospital.  They offered great support to me and my family.    I was visited in hospital by one of their staff Sue Hannam.  She helped me to get Disability Allowance forms filled and gave me the opportunity to do different things.

After I left the hospital I attended Headway House 1 day a week.  They encouraged me to try new things and teach me basic skills like cooking and craft.  They also help people build up their confidence.  There is different types of brain injury and some people are worse than others. 

I met many different people during my time there.  Each one of them has something to give to society.  It helped me to learn to accept people for who they are.  Headway provides a range of staff and volunteers who all have different skills. 

They encourage people to try new things and to try to do things for themselves.  This is good as it helps people to regain their independence. 

Headway send some of the clients to college courses in partnership with local colleges.  This is very successful and again gets people to meet others.  I did courses myself on cooking how independent living and one where we went out to different places each week.  This was a help to me and stopped me becoming isolated. 

When my time came for me to leave Headway House.  I was appointed an outreach worker Padma Ram.  Again she helped me to fill in forms and help me find some volunteer work which I still continue to do.  They also offer support in taking you to appointments and explaining things to you that you are having difficulties in understanding. 

Headway signed me off their books as I was managing on my own.  Recently they have got back in touch and they will be coming to see me again with a new worker Nicola Rowe.  They said that even though I am coping I could do with a little more support. 

I am really thankfull for the support they have given me an will do so in the future.  Headway see their clients with brain injuries as human and treat them with dignity.